I am exhausted of the paperwork. Red tape. Lack of resources. Lack of time. Lack of help.
We returned Saturday from our trip to Florida.
The weather was perfect. There were good days with Kiahna and then there were hard days. Typical.
Deanna came along & helped with her & helped the rest of us with other things when K wouldn't allow Deanna to help her & I had to give K all my attention.
Realistically, it was the best case it could have been with the resources and the circumstances we are in.
There is still the search for a new doctor to manage her meds. The developmental pediatrician had nothing new to offer. Her words were that I was doing everything that I could to advocate for K & that she really didn't have anything else to add or offer. While part of that statement is good, the realty is that the resources that we have are so limited and not enough to help her as she needs.
I had my appointment with Crossroads early in March. Was supposed to hear back in 10 days. After calling four times, I finally heard back yesterday.
She was DENIED services for wrap around.
The intake specialist says she is not giving up yet though. Tweaking the paperwork hoping the state will approve.
Super, super, super frustrated with this. All the red tape and lack of help.
The reality that the actual FASD diagnosis is not recognized by the state as a legitimate disability. You have to have other things to go along with it to make it significant enough to get the resources.
The reality that it's a brain issue, and it's being treated as a behavior issue & mental illness.
Such a huge, huge, huge mountain.
Good thing I have the ONE who moves mountains on my side.
In other news, James & Brookelyn were over Sunday night, they are both enjoying their new jobs & their new apartment.
Zach lost his job & moved back home.
Leah loved her trip to Mexico over spring break with the Sunday School! She got asked to prom & voted on the prom court! She needs a dress & is super super picky!
Lucas started his track season, had fun with the guys on our Florida trip & is loving having his drivers license.
Jadon is being a typical eleven year old and is doing all he can to help with Kiahna on a daily basis. Love his heart.
I'll leave with a few photos from your trips...
We had some friends of Koty's and their families with us this year. But this is who was there from our family. Colton was there for a few days early in the week, but didn't make the group shot.
My kids in Florida 2015
yes that's a mad walk. She didn't want to take photos, she wanted to swim.
A friend from Jadon's class was there with his family.
Eating makes her so happy.
Older girls who were super sweet with K all week.
From Leah's trip:
In His Grip,